We received GREAT news yesterday. Jacob had no ulcerations or abraisions in his esophagus, stomach or small intestine!!!! Praise God, for HE is good!!!! Now, let me explain a little about what that means. He is still diagnosed as having MFPIES (a food protein allergy) and that means that he can't tolerate any dairy or soy proteins or things like chicken, green beans, corn, etc. However, he will outgrow it, probably by the time he is one, but at the latest, by the time he is two. And.....I know this next part is going to sound mean, but Dr. Sacks, the gastroenterologist at Nemours (THE man) told us this himself. He doesn't have to stay on protein free formula since his insides are so clear. The proteins in Jacob's case are just causing him to throw up constantly (and I mean projectile vomiting when I say throw up) but are not causing any harm to him other than this. So, as long as he continues to gain weight, (the boy weighs 20 pounds and is only 4 months old!!!) and is not getting dehydrated, then we can put him on whichever formula we want.
Sidenote: The Neocate ($700.00 gold) is not improving his throwing up at all, so that is why the Dr. said that we don't have to stay on it. We would, of course, keep him on it if it was helping in any way. We are not just trying to get out of paying for it. And , No....I am not getting a new car. Hahaha.
Anyway, we go back to see the allergist in a couple of weeks, and go from there. The Dr. was really excited to see no inflammation in Jaxson's esophagus. He took a pinch biopsy of Jacob's stomach to send to the lab, and if it comes back with no microscopic ulceration, then we can even take Jacob off of his Reflux medicine, seeings that the vomiting is coming from a food allergy instead of reflux. Isn't this all GREAT?!?!?!?!
I am beyond words estatic that my baby is not in any pain. And truly, when he throws up, he is smiling. Hahaha. He is such a happy baby. We are not so happy to be thrown up on all the time, but hey, what can you do? We honestly carry changes of clothes for everyone in the family in the car wherever we go, because Mt. Jacob erupts every time he eats, and like 6 more times before the next feeding. I am NOT exaggerating about all of this vomiting. My friend Natalie was here on Monday and Tuesday from Mississippi, and she had thought that I was WAY stretching the truth about how often and how much this child blows, but she was like, "Oh my goodness! You are telling the truth. I had no idea!" Weren't you Natalie? Hahaha!!!!!! As the matter of fact, she was even in the line of fire a couple of times. :o)
Ok, Ok, I am rambling now. I am just so happy that my baby is not in any pain like we thought! So, thank you for all of your prayers. They were all felt, and we appreciate you loving our baby with us!
-Katie
Friday, January 30, 2009
Monday, January 26, 2009
Prayer needed
Please pray for us on Thursday. Jacob is going in to have a GI scope done and he has to be put to sleep. I am very nervous but can't wait to find out the results. FYI: He has severe reflux and also has been diagnosed with Multiple Food Protein Induced Enterocolitis Syndrome. So, as of now he is having to have Neocate formula which is running us about $700.00 a MONTH!!!! I would rather have a new car payment, but hey....It's not about me. Hahaha. I just hope and pray that on Thursday we find out that his stomach and esophagus are not ulcerated. It kills me to think that my baby is in pain. He is sooooo happy all of the time, and I pray that God will heal him and give us just a little peace of mind. But until he is all better, I will continue to feed him gold and not complain. (I have to keep a sense of humor about this, or I would just cry all the time, and that would do NO good.) Two babies crying is too much for anyone! Hahaha!
So, just remember us and lift us up in prayer on Thursday. That we will not be stressed, and mainly for Jacob as he goes through this procedure. Also, that we will find out EXACTLY, once and for all, what is the true diagnosis of my sweet baby. Thank you!
So, just remember us and lift us up in prayer on Thursday. That we will not be stressed, and mainly for Jacob as he goes through this procedure. Also, that we will find out EXACTLY, once and for all, what is the true diagnosis of my sweet baby. Thank you!
Thursday, January 22, 2009
Just another day......
Two mornings ago, as I was enjoying the quiet (unusual seeings that both boys were awake, so I should have suspected SOMETHING) and checking my email, Jaxson, freshly a 3 year old, came running into the office. He was so excited to tell me that he had written Jacob's name. Hence, the blue marker that was in his hand and the huge toothy grin of accomplishment on his face, my eyes bulging out of their sockets, and I say, "WHERE?!?!?!?!". He then tells me to come and look. Now is the time for you to be as proud as I was: (notice the hand)
Oh....but it soooo gets better:
And poor little thing didn't have a clue as to what had just happened to him. It just made him happy to be getting so much attention so early in the morning! So, this is just another day at the Moore house. Hey, at least the color that he chose matched what Jacob was wearing. That's my boy!
Oh....but it soooo gets better:
And poor little thing didn't have a clue as to what had just happened to him. It just made him happy to be getting so much attention so early in the morning! So, this is just another day at the Moore house. Hey, at least the color that he chose matched what Jacob was wearing. That's my boy!
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